Sources of congenital rubella support

Congenital rubella syndrome (CRS)

There are two groups online where you can share and learn more about CRS. Both are moderated by Nancy O’Donnell at the Helen Keller Centre in New York.

One group is for people affected by CRS, many of whom were at school together in Boston, USA. The group is busy, and has two main professional contributors, Nancy O’Donnell, and Pam Ryan from the Perkins School for the Blind, Watertown, MA. 

The other group is for worldwide professionals working with deafblind people. To find out more about joining, email Nancy O’Donnell at

Long-term health concerns

Health, wellbeing and congenital rubella syndrome conference: A Sense and Sense Scotland practice sharing event

You can download a detailed or summary report, from this March 2009 conference which brought together our knowledge about the effects of congenital rubella syndrome, especially as people get older, and how individuals with this condition can be supported.

International organisations

GAVI (Global Alliance for Vaccines and Immunization)

World Health Organisation information:




First published: Thursday 14 June 2012
Updated: Friday 14 March 2014